Alya Salon Spa
139 Park Street SE
Vienna, VA 22180
A Different Kind Of Skincare Routine
Skin care routines are a daily practice for many women and men around the globe. For some, it can be a five minute ritual with a simple moisturizer or an eye cream. For others, it can take up to eight hours a day. Now, who in the world takes eight hours to apply their skincare routine? It all starts with two simple letters: EB.
EB stands for Epidermolysis Bullosa. It is a rare genetic skin disease that causes the skin to blister and break away anywhere on the body. It is typically diagnosed in infancy, affects nearly 200 babies a year in the U.S. alone, and is often fatal.
Those who are diagnosed with EB live a life of constant pain and suffering. There is no cure for this disease, and its treatment consists mainly of wound care and pain relief, such as applying specialized ointments and bandages to blistered areas, and administering pain medication, commonly morphine. It has been dubbed “The Worst Disease You’ve Never Heard Of”, a slogan that is a hard pill to swallow, but nevertheless the hard truth.
An EB skincare routine is a world away from most, and not only does it affect those who suffer from it. EB takes its toll on their families as well. During these uncertain times, they need all the help and support that they can get.
There is an organization called DEBRA, which stands for the Dystrophic Epidermolysis Bullosa Research Association. It is a medical research charity founded by a team of incredibly hard-working and compassionate individuals. Their main goal is to provide support to EB sufferers and their families in the form of cash donations, wound care supplies, and funding for medical specialists to assure that those with EB are receiving the daily treatment that they so desperately need. DEBRA also leads a team of researchers who are currently conducting clinical trials in order to find a new way to fight against EB. In addition to that, DEBRA also provides the necessary educational materials on the diagnosis of EB, how to care for wounds, blisters, and how to recognize infections on their official website, www.debra.org.
It’s not about having glowing, blemish-free skin for the young men and women living with EB. Their daily skincare routine is painful, time-consuming and all in all a method of survival compared to most. So, the next time you apply your morning skincare routine, if you can find it in your heart please consider helping protect the skin of those afflicted by this disease by becoming involved with DEBRA and their efforts in the fight against EB. Together we can make a difference.